I attended a workshop hosted by the Digital Equity Lab where we discussed data stewardship. We used three sets of sample principles to generate group discussions. I think these can serve as a very helpful launching point for organizations seeking to develop their own specific principles.
The Detroit Digital Justice Coalition and Detroit Community Technology Project’s Guidelines for Equitable Open Data
- Protect the people represented by the numbers.
- Don’t retain personal information ties to accessing government services.
- Publish data about government processes, even for “public” vendors.
- Prioritize the release of new datasets based on community interest.
- Increase transparency around how datasets are defined and processed.
- Engage residents offline about open data.
- Share what’s coming next.
James Felton Keith’s proposed Data Bill of Rights
- The Right to Data Erasure: or to be forgotten;
- The Right to Data Portability: or to move either originals or copies;
- The Right to Data Restrictive Processing: or decide how analytics are leveraged;
- The Right to Data Education: or acquiring knowledge and skills needed to make decisions;
- The Right to Data Redress: or receive a fair settlement of just claims against processors;
- The Right to Data Ownership: or possession of property, regardless of the processors;
Best Practices to Secure Health Care Data
- Protect the network;
- Educate staff members (and volunteers);
- Encrypt portable devices;
- Secure wireless networks;
- Implement physical security controls;
- Write a mobile device policy;
- Delete unnecessary data;
- Vet third parties’ security; and
- Have a data breach response plan